Happy 10th Re Birthday Dad

It seems like a lifetime ago when I got the call on a cold November day. I was distracted that day with planning for the arrival of my first son, worried that his butt first presentation would mean a c-section. My three other babies were in the throws of cabin fever as we had been … Read more Happy 10th Re Birthday Dad

How a Rare Disease Has Touched My Life – Rare Disease Day 2011

  “People wonder at my continued survival but it is no mystery. I have felt the stillness at death’s door and decided I have not had enough of birdsong when the sun rises through the forest or the laughter of my children ringing in my ears. The danger comes in wanting too much and becoming … Read more How a Rare Disease Has Touched My Life – Rare Disease Day 2011